A PONTYPOOL family travelled to Cardiff yesterday to lobby the Welsh Government for better standards of care for patients with a form of Muscular Dystrophy.
Six-year-old Ethan Kinge, from Griffithstown, was diagnosed with Duchenne Muscular Dystrophy at the age of two-and-a-half.
He was joined at the Senedd by his parents John and Becky Kinge, four-year-old brother Joshua and around 20 other people to lobby Assembly Members, including Torfaen AM Lynne Neagle, for changes.
The event was organised by the charity Action Duchenne to call for further funding to increase standards of care for patients and for research to find a cure for the condition.
The Kemys Fawr Infant School pupil and his family also visited Downing Street last week for a similar visit in which they lobbied MPs and handed over a petition.
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